Blog Archives

Father’s Day

Andrew is an incredible father! I always thought he would be. After all, his father seemed like a pretty good role model for fatherhood. Gentle, patient, interested, clever and calm but Andrew’s fathering is a line on a graph that … Continue reading

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Meeting

We had a meeting with Neonatologists, Gastroenterologists, General Surgeons and the Sleep Team yesterday.ย  It was agreed that a Fundoplication is not necessary but that Rose will be given a Gastrostomy in a fortnight.ย  For her it is very important … Continue reading

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All is calm..

I’m back at the hospital. Looks like I managed to escape whatever Daniel (and now James) has. Rose hasn’t vomited since this morning and she had a reasonable BF tonight. It’s a long game getting the feeding right though. I … Continue reading

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Gas?

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Quiet Day

If I believe everything I’m told, Rose had a peaceful day today. She does look very peaceful at the moment. Apparently she’s the only baby on level 3 today who is not causing trouble… Level 3 is the “top” level … Continue reading

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2 steps forward, 1 step back

back to CPAP but first… a face!

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Cuddle etc

Rose’s teratoma biopsy came back today. Unfortunately it had cells that could become malignant. We were hoping for the benign type. Another thing to monitor. Her thyroid meds will be increased as tests came back that balance wasn’t right anymore. … Continue reading

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Rose โ€“ Day 16 / Week 32

We have a bit of news so thought a good time to send an update. If she remains stable, Rose will be given an MRI on Monday and all going well she will have her teratoma removed on Tuesday. Daunting … Continue reading

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