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Recent Posts
- Little School June 24, 2016
- The Luckiest March 8, 2016
- Gastrostomy Closure September 29, 2015
- Roll up, roll up, February 25, 2015
- Shouting from the rooftops time…. December 16, 2014
- A year out of hospital!! October 3, 2014
- Homemade Blended Formula June 23, 2014
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InstaRose - Photo Updates
#NichokidSuper exciting 📦 this morning!!! Perfect kindergarten reading. Congratulations, Binny!1st day of Kindergarten #reallyrosieStumbled across best cafe when taking Rose to OT. #Wishitwasinbalmain #steelstraws!#lastday#shesback quick trip to @victoireboulangerie for #postbugcalorieloading#extremelybrave🤞 #bloodtest6093Grandad’s macadamia farmMRI today to confirm no #cervicalteratoma regrowth. 🤞 #finalMRI - in this photo I’m telling her we are going across the road to hospital and she’s doing everything she can to avoid 😉Further Information
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Tag Archives: Sleep Study
Happy Birthday, Rose!
Today is Rose’s first birthday. It’s strange to contemplate celebrating a birthday before she’s a year old. At the moment 18 May, her due date, feels a lot more like a milestone for her but as the years go by … Continue reading
Sleep Study
Rose is having some work breathing on reduced highflow and her stridor is more pronounced. Oxygen levels good though. The sleep team want to try her on the ward without highflow before they perform the study so study has been … Continue reading
