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Recent Posts
- Little School June 24, 2016
- The Luckiest March 8, 2016
- Gastrostomy Closure September 29, 2015
- Roll up, roll up, February 25, 2015
- Shouting from the rooftops time…. December 16, 2014
- A year out of hospital!! October 3, 2014
- Homemade Blended Formula June 23, 2014
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InstaRose - Photo Updates
Beautiful morning. Happy Easter 🐣#annualnichoeasteregghunt #nichoannualeasteregghunt XVIII Tradition going strong 🙏🏻🙇♀️ @natanya.ssRose insisting on placing our cafe order on the weekend. She has learned so many skills to ensure she’s being heard, even in a noisy cafe! Order arrived without mistakes. #balmainsurvivalskills #grateful#NichokidSuper exciting 📦 this morning!!! Perfect kindergarten reading. Congratulations, Binny!1st day of Kindergarten #reallyrosieStumbled across best cafe when taking Rose to OT. #Wishitwasinbalmain #steelstraws!Further Information
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Tag Archives: Sleep Study
Happy Birthday, Rose!
Today is Rose’s first birthday. It’s strange to contemplate celebrating a birthday before she’s a year old. At the moment 18 May, her due date, feels a lot more like a milestone for her but as the years go by … Continue reading
Sleep Study
Rose is having some work breathing on reduced highflow and her stridor is more pronounced. Oxygen levels good though. The sleep team want to try her on the ward without highflow before they perform the study so study has been … Continue reading
