Category Archives: Uncategorized

Gastrostomy Closure

Posted on September 29, 2015 by

The day has arrived!! Rose is currently waiting at the Short Stay unit at SCH to go under general anaesthetic to have her gastrostomy surgically closed.

Posted in Uncategorized | 7 Comments

Roll up, roll up,

Posted on February 25, 2015 by

Come one, come all etc etc

Posted in Uncategorized | 7 Comments
Posted on December 16, 2014 by

If you have audio you’ll be able to hear that walking is QUITE a milestone in my mind!

Link | Posted on December 16, 2014 by | 6 Comments

A year out of hospital!!

Posted on October 3, 2014 by

A fitting day to celebrate with a Rose update. I have lots of photographs I want to share so please forgive the slideshow. James wrote a gorgeous book in class about Rose and dedicated it to her. I’m adding it … Continue reading →

Posted in Uncategorized | 8 Comments

Homemade Blended Formula

Posted on June 23, 2014 by

We have been busier than I ever thought possible for the last few months, establishing a Blended Diet (BD) for Rose!

Posted in Uncategorized | 6 Comments

Happy Birthday, Rose!

Posted on March 8, 2014 by

Today is Rose’s first birthday.  It’s strange to contemplate celebrating a birthday before she’s a year old.  At the moment 18 May, her due date, feels a lot more like a milestone for her but as the years go by … Continue reading →

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Good riddance 2013

Posted on December 31, 2013 by

Never again will I laugh at people who are superstitious about the number 13!! Though of course I’m sure (and I hope) a lot of you had awesome years. HAPPY NEW YEAR and thank you so so so much for … Continue reading →

Video | Posted on December 31, 2013 by | Tagged , | 4 Comments

Baby Glasses

Posted on December 19, 2013 by

After much online research and even some old fashioned calling around and speaking to ACTUAL people I settled on baby glasses from Tomato Glasses, I found an excellent blog post from a mother who seemed to have tried them all … Continue reading →

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Coming Out

Posted on October 3, 2013 by

Rose Eir O’Brien, born 8 Mar 2013 at RPA, Camperdown by emergency c-section. Born with a prenatally undiagnosed cervical teratoma. Birth weight 1,390g (243g teratoma). Intubated at birth and transferred to Royal Hospital for Women, Randwick, day 1, transferred to … Continue reading →

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What to think and how to feel?

Posted on October 1, 2013 by

I’ve spent the last week or so trying to keep up with Rose’s progress and how I feel about it and what it means and trying to keep on top of my hope reflex. It is strange going from 6 … Continue reading →

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Outside

Posted on September 19, 2013 by
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Sleep Study

Posted on September 18, 2013 by

Rose is having some work breathing on reduced highflow and her stridor is more pronounced. Oxygen levels good though. The sleep team want to try her on the ward without highflow before they perform the study so study has been … Continue reading →

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If you ask me…

Posted on September 16, 2013 by

Gastrostomies are not the simple solution they are marketed as!!!!

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Changing

Posted on September 14, 2013 by

Thought I should share a photo of Rose’s face the way it should be. Every week we need to change her ventilation equipment. She hates having her face touched but for the five minutes it takes to do the change, … Continue reading →

Posted in Uncategorized | 3 Comments

The other half..

Posted on September 8, 2013 by

Rose is six months old today [3 months and 21 days corrected]!  Let’s hope she spends the majority of the next six months on the right side of the Anzac Bridge 😉 My last post was terrible I know so … Continue reading →

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Back to Level 3?

Posted on September 6, 2013 by

That title probably had you all reading on with concern… it’s a wish not an actuality! We’ve been moved to Level 3 of the Children’s Hospital (C3West) and it’s not what we’re accustomed to!! Great nursing but for older children … Continue reading →

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CICU

Posted on September 3, 2013 by

My phone (I use it to post to Rose’s blog) is running out of batteries so just a quick one!  All went as planned. She’s sedated and looks comfortable. We are heading home to be with boys. Tomorrow I learn … Continue reading →

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Goodbye

Posted on September 3, 2013 by

Daniel cried through the fence when I dropped him at daycare this morning. I so wanted to pick him up and run away with him! But I had another goodbye to attend. Andrew and I just walked Rose into theatre. … Continue reading →

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Preparing for tomorrow

Posted on September 2, 2013 by

Today is the last day Rose will have the tummy she was born with. I’m trying not to be a sissy about it but I can’t help it. Today will just have to be a weak day… tomorrow is what … Continue reading →

Posted in Uncategorized | 9 Comments

Father’s Day

Posted on September 1, 2013 by

Andrew is an incredible father! I always thought he would be. After all, his father seemed like a pretty good role model for fatherhood. Gentle, patient, interested, clever and calm but Andrew’s fathering is a line on a graph that … Continue reading →

Image | Posted on September 1, 2013 by | 7 Comments