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InstaRose - Photo Updates1kg to 20kg and counting! Happy #worldprematurityday 💜💜 Thank you @royalforwomen & @sydney_kids for all you did for our 🌹#thebesthalloweeneveragainThank you, Ash @headfirst_photography Spooky!#mummonster won the pumpkin carving prize @nicholsonst_halloween @pick_a_pumpkin Yay for our newest PaP member 😘Thank you, for gracing our @nicholsonst_halloween stall with your talents, @knittedbyjacquiverbeek. @pick_a_pumpkin is next level this year 😍🎃🎃🎃@binnyillustration 🤗 🙇♀️. Binny - we finally did something with the beautiful print you did for Rose! Appropriately, mum made her a reading cushion! Thank you xHalloween ready @nicholsonst_halloween“I’m so glad I live in a world where there are Octobers” 🎃 🍂 #anneofgreengablesquote Almost time for #nichohalloweenfestival #balmaineast #balmain#jackfrost #thepaperdolls #juliadonaldson @rebecca_a_cobb @heybilljoyce #ourfavouriteday #bookweek2019. Thanks again, Gran!!Belated annual baby star and book drop visit x #nicugraduate #reobbabystarvisit #6 Lovely to see you @poxicle
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The day has arrived!! Rose is currently waiting at the Short Stay unit at SCH to go under general anaesthetic to have her gastrostomy surgically closed.
Come one, come all etc etc
A fitting day to celebrate with a Rose update. I have lots of photographs I want to share so please forgive the slideshow. James wrote a gorgeous book in class about Rose and dedicated it to her. I’m adding it … Continue reading
We have been busier than I ever thought possible for the last few months, establishing a Blended Diet (BD) for Rose!
Today is Rose’s first birthday. It’s strange to contemplate celebrating a birthday before she’s a year old. At the moment 18 May, her due date, feels a lot more like a milestone for her but as the years go by … Continue reading
Never again will I laugh at people who are superstitious about the number 13!! Though of course I’m sure (and I hope) a lot of you had awesome years. HAPPY NEW YEAR and thank you so so so much for … Continue reading
After much online research and even some old fashioned calling around and speaking to ACTUAL people I settled on baby glasses from Tomato Glasses, I found an excellent blog post from a mother who seemed to have tried them all … Continue reading
Rose Eir O’Brien, born 8 Mar 2013 at RPA, Camperdown by emergency c-section. Born with a prenatally undiagnosed cervical teratoma. Birth weight 1,390g (243g teratoma). Intubated at birth and transferred to Royal Hospital for Women, Randwick, day 1, transferred to … Continue reading