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Recent Posts
- Little School June 24, 2016
- The Luckiest March 8, 2016
- Gastrostomy Closure September 29, 2015
- Roll up, roll up, February 25, 2015
- Shouting from the rooftops time…. December 16, 2014
- A year out of hospital!! October 3, 2014
- Homemade Blended Formula June 23, 2014
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InstaRose - Photo Updates
A rare James and Rose capture#newglasses chosen by Rose with no motherly input...Happy International Doll.. I mean Rose.. no Women’s Day, Everyone! Thanks to the beautiful craftsmanship of Michelle @aiubi_dollmaker and Jacqui @knittedbyjacquiverbeek and Emily and cake maker @l_catering and gift givers @katekite2003 @l_catering, we are in for a quiet afternoon of make believe play 😊. Happy Birthday, our Rose 🌹#tbt #bookweek2019 to celebrate #worldbookday +1 and the special, #classic and ever popular #thepaperdolls - I must begin to think about influencing 2020 costume choices.....Posting for #feedingtubeawarenessweek2020 | Thanks to @feedingtubeawarenessfoundation for all your normalising and education!Rose is proud she’s finished kindy! I am proud of how much she and her classmates have learned and grown together in fun and friendship. Looking forward to the holidays though!1kg to 20kg and counting! Happy #worldprematurityday 💜💜 Thank you @royalforwomen & @sydney_kids for all you did for our 🌹#thebesthalloweeneveragainThank you, Ash @headfirst_photography Spooky!#mummonster won the pumpkin carving prize @nicholsonst_halloween @pick_a_pumpkin Yay for our newest PaP member 😘Further Information
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Category Archives: Uncategorized
Gastrostomy Closure
The day has arrived!! Rose is currently waiting at the Short Stay unit at SCH to go under general anaesthetic to have her gastrostomy surgically closed.
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If you have audio you’ll be able to hear that walking is QUITE a milestone in my mind!
A year out of hospital!!
A fitting day to celebrate with a Rose update. I have lots of photographs I want to share so please forgive the slideshow. James wrote a gorgeous book in class about Rose and dedicated it to her. I’m adding it … Continue reading
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Homemade Blended Formula
We have been busier than I ever thought possible for the last few months, establishing a Blended Diet (BD) for Rose!
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Happy Birthday, Rose!
Today is Rose’s first birthday. It’s strange to contemplate celebrating a birthday before she’s a year old. At the moment 18 May, her due date, feels a lot more like a milestone for her but as the years go by … Continue reading
Good riddance 2013
Never again will I laugh at people who are superstitious about the number 13!! Though of course I’m sure (and I hope) a lot of you had awesome years. HAPPY NEW YEAR and thank you so so so much for … Continue reading
Baby Glasses
After much online research and even some old fashioned calling around and speaking to ACTUAL people I settled on baby glasses from Tomato Glasses, I found an excellent blog post from a mother who seemed to have tried them all … Continue reading
Coming Out
Rose Eir O’Brien, born 8 Mar 2013 at RPA, Camperdown by emergency c-section. Born with a prenatally undiagnosed cervical teratoma. Birth weight 1,390g (243g teratoma). Intubated at birth and transferred to Royal Hospital for Women, Randwick, day 1, transferred to … Continue reading
What to think and how to feel?
I’ve spent the last week or so trying to keep up with Rose’s progress and how I feel about it and what it means and trying to keep on top of my hope reflex. It is strange going from 6 … Continue reading
