Category Archives: Uncategorized

Gastrostomy Closure

The day has arrived!! Rose is currently waiting at the Short Stay unit at SCH to go under general anaesthetic to have her gastrostomy surgically closed.

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Roll up, roll up,

Come one, come all etc etc

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If you have audio you’ll be able to hear that walking is QUITE a milestone in my mind!

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A year out of hospital!!

A fitting day to celebrate with a Rose update. I have lots of photographs I want to share so please forgive the slideshow. James wrote a gorgeous book in class about Rose and dedicated it to her. I’m adding it … Continue reading

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Homemade Blended Formula

We have been busier than I ever thought possible for the last few months, establishing a Blended Diet (BD) for Rose!

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Happy Birthday, Rose!

Today is Rose’s first birthday.  It’s strange to contemplate celebrating a birthday before she’s a year old.  At the moment 18 May, her due date, feels a lot more like a milestone for her but as the years go by … Continue reading

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Good riddance 2013

Never again will I laugh at people who are superstitious about the number 13!! Though of course I’m sure (and I hope) a lot of you had awesome years. HAPPY NEW YEAR and thank you so so so much for … Continue reading

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Baby Glasses

After much online research and even some old fashioned calling around and speaking to ACTUAL people I settled on baby glasses from Tomato Glasses, I found an excellent blog post from a mother who seemed to have tried them all … Continue reading

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Coming Out

Rose Eir O’Brien, born 8 Mar 2013 at RPA, Camperdown by emergency c-section. Born with a prenatally undiagnosed cervical teratoma. Birth weight 1,390g (243g teratoma). Intubated at birth and transferred to Royal Hospital for Women, Randwick, day 1, transferred to … Continue reading

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What to think and how to feel?

I’ve spent the last week or so trying to keep up with Rose’s progress and how I feel about it and what it means and trying to keep on top of my hope reflex. It is strange going from 6 … Continue reading

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