Category Archives: Uncategorized

Gastrostomy Closure

Posted on September 29, 2015 by

The day has arrived!! Rose is currently waiting at the Short Stay unit at SCH to go under general anaesthetic to have her gastrostomy surgically closed.

Posted in Uncategorized | 7 Comments

Roll up, roll up,

Posted on February 25, 2015 by

Come one, come all etc etc

Posted in Uncategorized | 7 Comments
Posted on December 16, 2014 by

If you have audio you’ll be able to hear that walking is QUITE a milestone in my mind!

Link | Posted on December 16, 2014 by | 6 Comments

A year out of hospital!!

Posted on October 3, 2014 by

A fitting day to celebrate with a Rose update. I have lots of photographs I want to share so please forgive the slideshow. James wrote a gorgeous book in class about Rose and dedicated it to her. I’m adding it … Continue reading →

Posted in Uncategorized | 8 Comments

Homemade Blended Formula

Posted on June 23, 2014 by

We have been busier than I ever thought possible for the last few months, establishing a Blended Diet (BD) for Rose!

Posted in Uncategorized | 6 Comments

Happy Birthday, Rose!

Posted on March 8, 2014 by

Today is Rose’s first birthday.  It’s strange to contemplate celebrating a birthday before she’s a year old.  At the moment 18 May, her due date, feels a lot more like a milestone for her but as the years go by … Continue reading →

Posted in Uncategorized | Tagged , | 13 Comments

Good riddance 2013

Posted on December 31, 2013 by

Never again will I laugh at people who are superstitious about the number 13!! Though of course I’m sure (and I hope) a lot of you had awesome years. HAPPY NEW YEAR and thank you so so so much for … Continue reading →

Video | Posted on December 31, 2013 by | Tagged , | 4 Comments

Baby Glasses

Posted on December 19, 2013 by

After much online research and even some old fashioned calling around and speaking to ACTUAL people I settled on baby glasses from Tomato Glasses, I found an excellent blog post from a mother who seemed to have tried them all … Continue reading →

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Coming Out

Posted on October 3, 2013 by

Rose Eir O’Brien, born 8 Mar 2013 at RPA, Camperdown by emergency c-section. Born with a prenatally undiagnosed cervical teratoma. Birth weight 1,390g (243g teratoma). Intubated at birth and transferred to Royal Hospital for Women, Randwick, day 1, transferred to … Continue reading →

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What to think and how to feel?

Posted on October 1, 2013 by

I’ve spent the last week or so trying to keep up with Rose’s progress and how I feel about it and what it means and trying to keep on top of my hope reflex. It is strange going from 6 … Continue reading →

Posted in Uncategorized | Tagged , | 10 Comments