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InstaRose - Photo UpdatesA rare James and Rose capture#newglasses chosen by Rose with no motherly input...Happy International Doll.. I mean Rose.. no Women’s Day, Everyone! Thanks to the beautiful craftsmanship of Michelle @aiubi_dollmaker and Jacqui @knittedbyjacquiverbeek and Emily and cake maker @l_catering and gift givers @katekite2003 @l_catering, we are in for a quiet afternoon of make believe play 😊. Happy Birthday, our Rose 🌹#tbt #bookweek2019 to celebrate #worldbookday +1 and the special, #classic and ever popular #thepaperdolls - I must begin to think about influencing 2020 costume choices.....Posting for #feedingtubeawarenessweek2020 | Thanks to @feedingtubeawarenessfoundation for all your normalising and education!Rose is proud she’s finished kindy! I am proud of how much she and her classmates have learned and grown together in fun and friendship. Looking forward to the holidays though!1kg to 20kg and counting! Happy #worldprematurityday 💜💜 Thank you @royalforwomen & @sydney_kids for all you did for our 🌹#thebesthalloweeneveragainThank you, Ash @headfirst_photography Spooky!#mummonster won the pumpkin carving prize @nicholsonst_halloween @pick_a_pumpkin Yay for our newest PaP member 😘
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The day has arrived!! Rose is currently waiting at the Short Stay unit at SCH to go under general anaesthetic to have her gastrostomy surgically closed.
Come one, come all etc etc
A fitting day to celebrate with a Rose update. I have lots of photographs I want to share so please forgive the slideshow. James wrote a gorgeous book in class about Rose and dedicated it to her. I’m adding it … Continue reading
We have been busier than I ever thought possible for the last few months, establishing a Blended Diet (BD) for Rose!
Today is Rose’s first birthday. It’s strange to contemplate celebrating a birthday before she’s a year old. At the moment 18 May, her due date, feels a lot more like a milestone for her but as the years go by … Continue reading
Never again will I laugh at people who are superstitious about the number 13!! Though of course I’m sure (and I hope) a lot of you had awesome years. HAPPY NEW YEAR and thank you so so so much for … Continue reading
After much online research and even some old fashioned calling around and speaking to ACTUAL people I settled on baby glasses from Tomato Glasses, I found an excellent blog post from a mother who seemed to have tried them all … Continue reading
Rose Eir O’Brien, born 8 Mar 2013 at RPA, Camperdown by emergency c-section. Born with a prenatally undiagnosed cervical teratoma. Birth weight 1,390g (243g teratoma). Intubated at birth and transferred to Royal Hospital for Women, Randwick, day 1, transferred to … Continue reading