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InstaRose - Photo UpdatesSuper exciting 📦 this morning!!! Perfect kindergarten reading. Congratulations, Binny!1st day of Kindergarten #reallyrosieStumbled across best cafe when taking Rose to OT. #Wishitwasinbalmain #steelstraws!#lastday#shesback quick trip to @victoireboulangerie for #postbugcalorieloading#extremelybrave🤞 #bloodtest6093Grandad’s macadamia farmMRI today to confirm no #cervicalteratoma regrowth. 🤞 #finalMRI - in this photo I’m telling her we are going across the road to hospital and she’s doing everything she can to avoid 😉#exploitation#bookweek #bookweek2018 Arthur Dent from Hitchhikers Guide to the Galaxy, Douglas Adams / Tinny, Ollie’s Odyssey, @heybilljoyce / Edie from #themarvellousfluffysquishyittybitty, Beatrice Alemagna. Thank you to all illustrators and writers of children’s books. We embrace this special day as a chance to show our appreciation for the new worlds you open up in our hearts and minds.
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The day has arrived!! Rose is currently waiting at the Short Stay unit at SCH to go under general anaesthetic to have her gastrostomy surgically closed.
Come one, come all etc etc
A fitting day to celebrate with a Rose update. I have lots of photographs I want to share so please forgive the slideshow. James wrote a gorgeous book in class about Rose and dedicated it to her. I’m adding it … Continue reading
We have been busier than I ever thought possible for the last few months, establishing a Blended Diet (BD) for Rose!
Today is Rose’s first birthday. It’s strange to contemplate celebrating a birthday before she’s a year old. At the moment 18 May, her due date, feels a lot more like a milestone for her but as the years go by … Continue reading
Never again will I laugh at people who are superstitious about the number 13!! Though of course I’m sure (and I hope) a lot of you had awesome years. HAPPY NEW YEAR and thank you so so so much for … Continue reading
After much online research and even some old fashioned calling around and speaking to ACTUAL people I settled on baby glasses from Tomato Glasses, I found an excellent blog post from a mother who seemed to have tried them all … Continue reading
Rose Eir O’Brien, born 8 Mar 2013 at RPA, Camperdown by emergency c-section. Born with a prenatally undiagnosed cervical teratoma. Birth weight 1,390g (243g teratoma). Intubated at birth and transferred to Royal Hospital for Women, Randwick, day 1, transferred to … Continue reading