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It’s been an exciting couple of weeks for Rose. She was accepted into a local community pre-school. She’s really loving it and doing so well. A friend said they thought such a milestone was “post worthy” and I was thinking … Continue reading
Rose turns 3 today. Thank you for your interest in Rose’s journey. She’s a wonder and it is my privilege to “show off” her past year in this slideshow today. Happy Birthday, Rosie!
The day has arrived!! Rose is currently waiting at the Short Stay unit at SCH to go under general anaesthetic to have her gastrostomy surgically closed.
Come one, come all etc etc
A fitting day to celebrate with a Rose update. I have lots of photographs I want to share so please forgive the slideshow. James wrote a gorgeous book in class about Rose and dedicated it to her. I’m adding it … Continue reading
We have been busier than I ever thought possible for the last few months, establishing a Blended Diet (BD) for Rose!
Today is Rose’s first birthday. It’s strange to contemplate celebrating a birthday before she’s a year old. At the moment 18 May, her due date, feels a lot more like a milestone for her but as the years go by … Continue reading
Never again will I laugh at people who are superstitious about the number 13!! Though of course I’m sure (and I hope) a lot of you had awesome years. HAPPY NEW YEAR and thank you so so so much for … Continue reading
After much online research and even some old fashioned calling around and speaking to ACTUAL people I settled on baby glasses from Tomato Glasses, I found an excellent blog post from a mother who seemed to have tried them all … Continue reading
Hello! I’ve been trying to work out why I haven’t wanted to write a post since I brought Rose home and I think it has something to do with living all those months with no privacy and then finding myself … Continue reading
Rose Eir O’Brien, born 8 Mar 2013 at RPA, Camperdown by emergency c-section. Born with a prenatally undiagnosed cervical teratoma. Birth weight 1,390g (243g teratoma). Intubated at birth and transferred to Royal Hospital for Women, Randwick, day 1, transferred to … Continue reading
I’ve spent the last week or so trying to keep up with Rose’s progress and how I feel about it and what it means and trying to keep on top of my hope reflex. It is strange going from 6 … Continue reading
Rose is having some work breathing on reduced highflow and her stridor is more pronounced. Oxygen levels good though. The sleep team want to try her on the ward without highflow before they perform the study so study has been … Continue reading
Gastrostomies are not the simple solution they are marketed as!!!!
Thought I should share a photo of Rose’s face the way it should be. Every week we need to change her ventilation equipment. She hates having her face touched but for the five minutes it takes to do the change, … Continue reading
Rose is six months old today [3 months and 21 days corrected]! Let’s hope she spends the majority of the next six months on the right side of the Anzac Bridge 😉 My last post was terrible I know so … Continue reading
That title probably had you all reading on with concern… it’s a wish not an actuality! We’ve been moved to Level 3 of the Children’s Hospital (C3West) and it’s not what we’re accustomed to!! Great nursing but for older children … Continue reading