Rose turns 3 today.
Thank you for your interest in Rose’s journey. She’s a wonder and it is my privilege to “show off” her past year in this slideshow today.
Happy Birthday, Rosie!
Medically she is doing well.
In terms of her Hypothyroidism (no thyroid gland), her TSH, Free T4 and Free T3 have stayed level without requiring any change in her thyroxine dosage for many months.
In terms of her vocal cord palsy, her voice and vocabulary grow in strength and variety with each passing week. She starts voice and speech therapy this week. I’m hoping this will give her tools to help her successfully communicate with those around her.
She continues to be dependent on CPAP for sleeping and complying with this is just about destroying us (with many wake ups during the night to replace her mask)… but this is a small, worthwhile thing when we consider the damage not wearing her mask could do.
This year we’ve been fortunate and grateful to have had two talented people in Rose’s day to day life, Renae and Andrea have been her In Home Educators 2 days a week and they’ve made a huge contribution to her learning, language and enjoyment of life. It’s a priority now, for her verbal development, to increase her peer interaction. We are working towards finding a place for her in a local pre-school.
Today we are going to the hospital for blood tests and CPAP mask shopping and to drop some book donations to NICU. I will take a moment while we are there to think about how far Rose has come and how amazing this journey has been and how lucky I am to see her face every day xoxo