A fitting day to celebrate with a Rose update. I have lots of photographs I want to share so please forgive the slideshow. James wrote a gorgeous book in class about Rose and dedicated it to her. I’m adding it here as I expect one day she will read this blog. 
I’m sure I’ve bored most if you to tears with the news that Rose did some modelling for Broken Tricycle recently. Camille Nuttall, a kind and talented photographer took a beautiful shot of her. 
Rose had her first MRI post post-op brain seizures (1 year plus) to check for teratoma regrowth. They didn’t find anything of immediate concern. I was hoping they’d see some thyroid tissue that would mean her hypothyroidism may not be a life long challenge but no such luck. I guess I was pushing it! I’m looking to start working again soon. I think it’ll be good for my disintegrating brain but also it’s completely necessary after a year on one income. We have moved house recently. Still Balmain but a smaller place and a bit further away from school. I think it’s strange for the boys leaving our neighbours. They’ve always been half convinced that we were all the one family! 
- Follow Rose Eir on WordPress.com
-
Recent Posts
- Little School June 24, 2016
- The Luckiest March 8, 2016
- Gastrostomy Closure September 29, 2015
- Roll up, roll up, February 25, 2015
- Shouting from the rooftops time…. December 16, 2014
- A year out of hospital!! October 3, 2014
- Homemade Blended Formula June 23, 2014
Search Rose Eir
InstaRose - Photo Updates
#nichoannualeasteregghunt XVIII Tradition going strong 🙏🏻🙇♀️ @natanya.ssRose insisting on placing our cafe order on the weekend. She has learned so many skills to ensure she’s being heard, even in a noisy cafe! Order arrived without mistakes. #balmainsurvivalskills #grateful#NichokidSuper exciting 📦 this morning!!! Perfect kindergarten reading. Congratulations, Binny!1st day of Kindergarten #reallyrosieStumbled across best cafe when taking Rose to OT. #Wishitwasinbalmain #steelstraws!#lastdayFurther Information
Support Groups
How lovely to see the photos of Rose. One day we will meet her in person! You both must be so pleased with her progress. Loved the book James made about her something worth keeping. Hope the move wasn’t too stressful for you all. It was great catching up with you, Jane and the boys at Mia’s birthday
LikeLike
My what a long way you have all come in this journey together. It’s beautiful to see the clip of Rose crawling along the floor of your new home and to see her proud expression as she reaches the camera (phone). I love the story James wrote, it’s very touching. I’m so proud of you all. You and Andrew are amazing parents and I”m in awe of both of you.
Loads and loads of love,
San xx
LikeLike
She is just beautiful jane you and Andrew should be very proud love Nan
LikeLike
Hey Jane, I hadn’t been on this site for a while as wasn’t sure if you were still posting on here. What a gorgeous wee girl she is turning into. You can see the determination in her eyes as she is crawling.
LikeLike
A great day of celebration Jane – Rose is beautiful and her eyes just talk to you!
Enjoy your New Home.
We had a wonderful weekend with Ann & Dave, it was great hearing what you are all doing & seeing photos.
LikeLike
Such a joy to read this post & see the little lady – & just how far she (and all of you!) have come.
With love & hugs from afar Xx
ps – new address at some stage please!
LikeLike
great update Jane, !! can I pass this link onto Luke M (accountant) he was asking about you both the other day..
LikeLike
Sounds like you are all growing into a beautiful rhythm as a family xx
LikeLike