I’ve been trying to work out why I haven’t wanted to write a post since I brought Rose home and I think it has something to do with living all those months with no privacy and then finding myself with an abundance of it. I’ve become introverted. I think also that at home my energies are diverted to other things where at hospital I’m able to focus on caring for Rose. It’s simpler, less muddled with every day life. It’s been a tough time at home but ultimately we are all happier. We have become a proper family at last!
The reason for this post is to bring you up to speed on Rose. We are back in hospital. Eerily we are in the same room we were in for most of Rose’s stay in Kids. The difference being it is now the infectious ward and there’s no one else in our (6 bed) room. We are missing our friends but so much happier knowing they are healthy and out in the world, coincidentally they are having their first catch up since discharge today. I was looking forward to seeing how much they’ve all grown.
Rose has a mild cold. When I took her to emergency on Tuesday morning she was tachycardic (up to 223 bpm) and febrile (39.5) and her respiratory rate was up (78), she had a rash on her chest and a wet cough, she was admitted.
I can’t describe to you how tired I am. Tired and so stupid and a bit desperate with it. I regularly fantasise about walking out of my life like a character in an Anne Tyler novel and crawling into a secret bed somewhere and sleeping my life away. There is, however, so much joy in caring for Rose. She’s carved a huge niche for herself in our family. As James said last night when we had a family hug sans Rose:
The other half of our family is missing.
Overnight Rose was settled with normal temp, heart and respiratory rates. The wonders of regular Panadol!! I slept and am a new mother (panic much?!). We we’ve been given the okay to go home.
Rose had an outpatients appointment with the Eye Clinic today that we managed to change to an INpatients appointment. She has a pronounced squint which basically means she’s cross-eyed – long sighted in one eye… I think. She needs glasses and maybe an operation but they’re happy to wait and see how much the glasses help first. The Eye Clinic feels like familiar territory and I don’t feel too worried about this aspect of her treatment. It helps having known another little girl who had challenges with her eyes from birth and overcame them beautifully. Rose’s ophthalmologist is Dr Kimberley Tan.