Rose is having some work breathing on reduced highflow and her stridor is more pronounced. Oxygen levels good though.
The sleep team want to try her on the ward without highflow before they perform the study so study has been moved to Thursday night.
Rose had SO many visitors yesterday!! Photo below:
Alyssa & Dianne, school friends, were visiting SCH for an appointment so dropped in for a visit. It was gorgeous to see Rose so engaged with Alyssa!! She had made beautiful flower and butterfly puppets for Rose and read her some stories!! Play therapy at it’s best and most genuine.
Lou (with lots of consultation with Son, Liz and San) arranged for me to see a clinical psychologist at Prince of Wales Private. Was a really good thing to do. Better than I’d hoped. I will try to do regularly but she wasn’t super concerned about how I was coping which was reassuring!!!
Further extra exciting news for today that’s unfolded as I’ve been editing this post is that Rose has been taken off daytime highflow!! I did a celebratory walk outside her room and back. I intend to try to race OUTSIDE at some point today if my latest bout of mastitis calms down. Wow – what adventures we are having!
Rose Eir 
Where’s mum gone? hope the sleep study goes well. Eliza & I will pop in for a visit during the holidays. Jxx
How alert she is Jane. Hope all goes well Thursday and you are one step closer to getting Rose home to her family. Love to you all x x x
Rose responds so well with children – she will love it when she is home with her big brothers.
Good luck with the High Flow and the “mastitis” Grrrrr!!
It was lovely to see you and meet beautiful Rose. Alyssa was so excited and really enjoyed interacting with Rose. She has spoken about her so much since our visit.