Something’s up

Rose was given a routine blood gas* last night which showed her carbon dioxide is high. This indicates insufficient ventilation so she’s back on high flow. Interestingly I raised the high flow issue a couple of days ago when I thought she was inappropriately sleepy and losing interest in feeding again.

A blood test also showed her platelets are very high. Apparently this could be a viral response.

I feel they stopped the high flow too soon and she could have used a couple more days support while she was recovering from her illness. It certainly made a difference for her while she was on it. I think it’s the reason she seemed so good when I came back to the hospital. Over the past couple of days she’s definitely been deteriorating.

Now as I sit here with her her oxygen saturation is much lower than usual, even on 6 litres of high flow and 26% oxygen support, so I’m fretting. Hopefully it’s all just the after effects of the flu and nothing more complicated but I am feeling quite uneasy about it. Roxy is on today and is well on top of the situation so Rose is in good hands.

High flow makes transfer to Children’s impossible so we will be staying put for a couple more days at the least I am guessing.

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* blood test to determine the levels of oxygen, carbon dioxide, and acidity in the blood, test is performed by collecting blood from a heel prick in a small clear straw and placing it in a special machine, results are instantaneous)

About RoseEir

Premmie born @ 30 weeks with Cervical Teratoma
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4 Responses to Something’s up

  1. Ann Morgan says:

    As Narelle will tell you – you always know what is best for your child. Hope this is just a little hiccup and she rallies quickly. xx

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  2. Caroline Parsons says:

    Sweetheart, I often think about our tuna pasta in the sun a few weeks ago. It was a magic moment, to spend time with you, but it must be so hard to be still eating tuna pasta every day.

    I think you are the strongest, cleverest, most intuitive, understanding mum who ever lived. Rose is so so lucky to have you. I don’t know anyone else who would handle this as well as you.

    You are a frickin legend hon. Don’t give up and don’t let it get you down. You’ll both get there…

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  3. Lucy Lum says:

    I agree with Ann and Caroline – No-one is more in tune with Rose than you Jane. Hang in there!
    I have been away in Melb. for a school reunion – tried to send a reply to previous updates but my iPad wouldn’t send. Joan was with me and she and I both thought Rose looked so strong and she has shown such inner strength, so that will help her. xoxo

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  4. I agree with everyone else! You’re amazing & Rose is a force to be reckoned with! But there’s only so much tuna pasta that can be eaten – can we drop off something else instead?

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