I don’t want Rose to be given a Fundoplication. Seriously.. every fibre of my being screams NO whenever I’m asked to consider it. I felt like this before I understood exactly what it involves or how painful the side effects are so I can’t cite these things as rational reasons for not allowing them to cut into her again and change her anatomy to fix a potentially life threatening problem. A problem that can fix itself OVER TIME. The problem probably still exists and if it does and it’s not just an HMF issue mixed with her reflux and Tracheomalacia (HMF no longer being added to my EBM). Ok even I can hear how desperate that sounds..
I know it probably sounds like I don’t want her to have to go through another op but it’s more than that. This feels wrong… a lot more discussion with specialists required of course but rant has helped.
We tried Rose with a teat during her 12 o’clock feed. She gags quite a bit so we are just going to work on desensitising her gag reflex for a few days by gently stimulating her suck reflex and following her cues.
Room booking in Randwick runs out on Friday. I’m thinking of moving home so I am at least under the same roof as my family when they’re sleeping…