Difficult 48 hours but both Rose and I seem to have survived our enforced separation. I felt a bit unhinged during my time away but that’s been brought into perspective by a young couple in the parents room grief stricken because they have to let their baby go today. When we were going through the teratoma removal and the seizures I wished fervently for that type of release for Rose and selfishly for myself but now I can’t imagine feeling that way. This place is not for the faint of heart. Sitting amongst all this horrific grief, not being part of it… having escaped it so far… I can’t put in to words how that feels. I know it’s not true but it FEELS easier to go through something a bit like it (as we did during the seizures) than to sit by helpless while someone else does.
The Grandmother just came in and picked up Time for Bed, as it’s their family’s special children’s book, to read to their baby before they turn off his life support. I think the benefit of our little library reached new heights today. Thank you thank you and all my love and acknowledgment of how we must’ve made your hearts ache in the early days and weeks.
Thanks, Chantelle for Time for Bed!