Absence

Rose pulled out her trans-pyloric tube this evening. It is potentially dangerous as continuous feeding means food could have gone into her airway as the tube came up. They do think she’s ok. Though she’s had a couple of destats, she’s recovered well.

I want to be with her all the time. I still feel I have important responsibilities outside NICU but I feel so anxious when I’m away from her and so responsible when something like this happens because of course it’s my job to watch her not anyone else’s. They are there for when she needs medical attention. I need to be there to watch over her. Keep her safe. Be her mum.

They’ve put a gastric tube in for tonight. It will be interesting to see how she goes. I’m feeling quite nervous.

They’re keen for her to go to an open crib as she’s self regulating her body temperature now she’s full term. This means we will be able to dress her and it’ll be easier to change her nappy. There are pros and cons for moving her. She won’t be shielded from the harsh lighting, when it’s on, anymore. Germs will have easier access and I gather the NICU noise will be noisier.

Mother’s Day tomorrow. I wonder what a NICU Mother’s Day looks like? Hope you all have a wonderful day. I’ll be pushing for an extra long cuddle!

About RoseEir

Premmie born @ 30 weeks with Cervical Teratoma
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5 Responses to Absence

  1. Lucy Lum says:

    Its approaching midnight and you are the Mum who is first and foremost on my heart. Have a great day with the boys and Rose (hope you get that extra long cuddle Jane ), you deserve it! Praying the pros will outweigh the cons in this move for Rose and that she is having a good night.
    Love Lucy

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  2. Barbara says:

    Rose is full term lovely !! Have a wonderful mothers day for you and your mum x x

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  3. Kylie says:

    Mother’s Day in NICU…I reckon that you will all be presented with your superhero capes! Xxxx

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  4. Tracy Pasco says:

    Mothers Day in NICU….bound to be costumes and streamers. Thinking of you guys today – hope you get some special cuddle time. xx Love Tracy, Pete & Reuben

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  5. San says:

    Happy Mother’s Day gorgeous. You are a brilliant and inspiring Mum and I love you (Andrew, James, Daniel and Rose too!). xx

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