Age: 40 (days) | Corrected age 35+5 (weeks)

I thought I knew what nerves felt like but I don’t think I’ve ever been as nervous as I was this morning. You’d think the teratoma op would have been a lot more overwhelming but I think I was still in a state of shock then.

I know it’s pointless but my instinct is to keep hoping Rose can come out of this unscathed and grow into a normal baby. I know reasonably that this is just not possible but I keep catching myself wishing for it.. trying to do the little that is within my power to work towards it!

She was successfully extubated šŸŽ‰. So now she’s on CPAP. I think she’s more comfortable already. She does look a bit surprised at her new ventilation set up. She keeps opening her mouth and letting the CPAP pressure escape so they’re going to put a chin strap on her to keep her mouth closed. I know a few other people in my family who could use one of them!

Anyway, today was definitely a win I was not anticipating. Tracheostomy less likely but certainly not ruled out. This will give her trachea a better chance of recovering though.

The extubation has opened the door for another question to be answered. Can Rose make a sound? Nothing external stopping her now and I have a strong inclination to sit beside her until she does! I’ll keep you posted on that one.

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About RoseEir

Premmie born @ 30 weeks with Cervical Teratoma
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8 Responses to Age: 40 (days) | Corrected age 35+5 (weeks)

  1. Ann Morgan says:

    What great news Jane! Another step forward.

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  2. Kate says:

    Yay! I’m so happy and love her new stylish hat. Hoping for the best with the breast feeding and noises. Love you, Kate.

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  3. Ben G Morgan says:

    Such good news Jane! As strange as the contraption looks, she actually seems much more comfortable, or at least more like she’s just being assisted now, rather than having full-on support. Thanks for the update šŸ™‚

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  4. Abi says:

    Hurrah! Big sigh of relief, so glad Rose came through this next big step. She definitely looks more at ease now. My fingers are crossed that she will emit a sound soon! Your instincts are right and this little miracle girl has already come SO incredibly far, I think she will continue to surprise you. There can’t be such a thing as too much hope. For you, Jane, who always did like a literary quote or two:

    ‘Alice laughed: “There’s no use trying,” she said; “one can’t believe impossible things.”
    “I daresay you haven’t had much practice,” said the Queen. “When I was younger, I always did it for half an hour a day. Why, sometimes I’ve believed as many as six impossible things before breakfast.”
    Alice in Wonderland

    Lots of love,
    Abi
    Xxx

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  5. Kylie says:

    Chin strap on but mouth still open…strong as an ox! Go Rose xxxx

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  6. Elizabeth says:

    Great news Jane, she is a little fighter, go Rose keep going you are so so loved.Thanks Jane for sharing I will pray she gets stronger everyday
    Lots of love and hugs
    Elizabeth xx

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  7. Fi says:

    Cheers to so many more ‘good’ days. Rose is proving to be quite the inspiration.. as are you gorgeous girl xx

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  8. Liz Blackburn says:

    Hi Jane. We are thinking of you and Rose and your family. Positive thinking goes a long way. We are sending these vibes to you from our new home in Wagga. Rose sounds absolutely amazing. Lots of hugs. Liz, Rhys and Alice Blackburn xxx

    Like

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