I thought I knew what nerves felt like but I don’t think I’ve ever been as nervous as I was this morning. You’d think the teratoma op would have been a lot more overwhelming but I think I was still in a state of shock then.
I know it’s pointless but my instinct is to keep hoping Rose can come out of this unscathed and grow into a normal baby. I know reasonably that this is just not possible but I keep catching myself wishing for it.. trying to do the little that is within my power to work towards it!
She was successfully extubated 🎉. So now she’s on CPAP. I think she’s more comfortable already. She does look a bit surprised at her new ventilation set up. She keeps opening her mouth and letting the CPAP pressure escape so they’re going to put a chin strap on her to keep her mouth closed. I know a few other people in my family who could use one of them!
Anyway, today was definitely a win I was not anticipating. Tracheostomy less likely but certainly not ruled out. This will give her trachea a better chance of recovering though.
The extubation has opened the door for another question to be answered. Can Rose make a sound? Nothing external stopping her now and I have a strong inclination to sit beside her until she does! I’ll keep you posted on that one.