Rose’s teratoma biopsy came back today. Unfortunately it had cells that could become malignant. We were hoping for the benign type. Another thing to monitor.
Her thyroid meds will be increased as tests came back that balance wasn’t right anymore.
They came down too fast on morphine so she experienced a bit of withdrawal. Not too bad – scored 13/40 on their withdrawal checklist but over 10 is of concern so they’ve gone back up and will wean a bit more gradually.
Katie arranged for me to hold her for a while. I know it will sound like I’m torturing myself but I swear Rose could smell me and wanted to feed. She could be quite hungry at moment as morphine withdrawal making her vomit and her feeds still only about half. 12mls now compared to 21mls pre procedure.
I’m going to try to go home for a sleep before pick up today. Yesterday is catching up with me. Thank you for all your messages. Do unfollow blog if you’re getting NICU fatigue. I would completely understand. This is probably like watching the slowest car crash ever at times. Feels like I’m behind the wheel, the doctors are the car manufacturer and poor Rose stuck in back without a baby capsule.
Oh.. She weighs 1.72kg at moment.
Katie’s off for a week while she moves house! How will we manage!? I asked about attachment parenting in NICU today.. answer wasn’t as terrible as I thought it would be (a lot of babies are left to cry when parents aren’t around and I thought it might be policy). The nurses will cuddle babies when they cry if they know parents are happy for that to happen and if they have time.. cuddle away I say!! Tho’ of course this is another cart before horse issue but it’s one that’s been preoccupying me.