So… today is the day they try to remove Rose’s ventilation tube (the one that goes thru’ her nose). If she can breathe by herself then she’ll be free from everything that’s tethering her to her crib and that means I can hold her AND start to try feeding her… lots of ifs but we are very hopeful. She should go in to theatre around 10am. I’ll have an update this afternoon..
UPDATE: they ended up taking her just after 1. I’ll stay until she’s out and I’ve spoken to drs. Looks like even if she can’t breathe independently today she won’t be trached but reintubated.
Rose Eir 
Wishing you all the luck in the world. Our love an thoughts are with you and Rose.
It will be hard to concentrate on work this morning! Sending you both all my love and positive feelings for a fantastic outcome. Mum aka Gran xx
Our thoughts and prayers and love are with you all! Big big hugs, Ness xx
Big day for you all, hang in there as best you can. Hope it goes smoothly. Jen xoxo
XXx
Thinking of you all constantly, hope today went well for Rose and she is free to be in your arms. Lots of love and prayers. Axxxx
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