So… today is the day they try to remove Rose’s ventilation tube (the one that goes thru’ her nose). If she can breathe by herself then she’ll be free from everything that’s tethering her to her crib and that means I can hold her AND start to try feeding her… lots of ifs but we are very hopeful. She should go in to theatre around 10am. I’ll have an update this afternoon..
UPDATE: they ended up taking her just after 1. I’ll stay until she’s out and I’ve spoken to drs. Looks like even if she can’t breathe independently today she won’t be trached but reintubated.