When I arrived for cares this morning (under my own steam – decided I can start driving as I hit my frustration limit). Rose had her eyes open wide. She was also lying in a puddle of her own undetected vomit and very unsettled but I’ll try not to focus on that. Seems my next huge challenge will be trusting other people to love her enough to take special care of her. Impossible of course. The bonding balance for me has tipped too far. I just want to set up camp here (beside her bed) and tell everyone else to go away! They all do an amazing job but how can they give her what she needs? She needs me (ok and a fair amount of specialist care!!).

Anyway.. I opened a new post to show you a photo Katie took overnight.

I’ve pasted notes I took at rounds for Andrew below in case you’re interested in the detail:
On full feeds
Vomited again this morning so hold off on adding vitamins / fortifier to EBM
ALDTP starting to climb (this is liver function test results) – be aware but not of concern yet
Laryngo Broncho Esophagoscopy (camera exam of throat) + change of tube may happen Tuesday.
Still question of when to remove central line. Can’t do during op as when they extubate her she needs to be able to breathe for herself (if she can) if she’s anaesthetised she won’t be able to do this.
Weighed again: 1,600 she’s lost weight – assuming fluid so not a bad thing

Hope you all have a good weekend

About RoseEir

Premmie born @ 30 weeks with Cervical Teratoma
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6 Responses to Awake

  1. Kate says:

    She is looking so much better, Jane. I’m so amazed that it was less than a week ago I saw her and how much she has changed. Love to all. Aunty Kate

  2. Vanessa Kingston says:

    Hey huni, big big big hugs to you. She is such a beautiful little soul, and so very lucky to have you as her mum. It is so understandable how you are feeling….keep up the faith and hopefully soon you will be able spend more contact time with Rose. We are thinking about you all constantly and sending our prayers your way. Love Ness and the boys

  3. Fi says:

    Beautiful eyes! xx

  4. Son says:

    What a cutey. She does need you Jane and she’s got you…and the rest of her loving family xxx

  5. San says:

    Morning Jane,
    How lovely to see Rose looking so awake and gorgeous – thank you. Really looking forward to seeing you both tomorrow. Xxx

  6. Kylie says:

    Loving the blog Jane and so look forward to checking in daily on Rose’s progress. LOVE today’s pic with her eyes open! Just gorgeous 🙂 Sending Rose, you and the boys loads and loads of love. XXXX

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