Rose Eir was born at 30 weeks by emergency caesarian. Spontaneous labour occurred due to undiagnosed polyhydramnios caused by an undiagnosed Cervical Teratoma (giant neck tumour).
She has hypothyroidism due to the absence of a thyroid gland. She has vocal right cord palsy and vocal cord webbing which means she can’t use her vocal cords to speak. She had a gastrostomy and fundoplication placed at 10 months and removed 2 years later after successfully establishing oral eating. She is on C-PAP to sleep.
She’s four now and lives every day to the full, just like any other four year old.